What Happened to Nikki Lilly? The YouTuber Explains Her Medical Condition

What happened to Nikki Lilly? The YouTuber opens up about the rare condition that modified her existence ceaselessly.

If you don’t already know Nikki Lilly’s name, it’s time to be told it. The 15-year-old is a popular YouTuber, philanthropist, and Junior Bake Off champion, who additionally happens to have her own TV display.

The Brit is clearly no longer your moderate teenager, but she’s recognized since the age of six that she’ll never be considered "normal" due to her AVM, or arteriovenous malformation. Here’s how Nikki grew to become a devastating analysis on its head to turn out to be an inspiration to thousands and thousands.

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What happened to Nikki Lilly?

AVM is an especially rare medical condition that reasons arteries and veins in the head, neck, or backbone to swell due to an odd tangle of blood vessels. In Nikki’s case, the condition affects the right aspect of her face and once in a while causes life-threatening nosebleeds. She’s gone through over 40 operations as a result of her diagnosis.

To assist cope with the physical transformation caused by AVM, Nikki became to YouTube to talk about make-up, track, meals, and her day-to-day regimen. She shared her medical tale, but selected no longer to dwell on her differences, as an alternative highlighting how her journey thru adolescence is the identical as her friends'. 

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Eventually, Nikki grew assured enough to permit comments on her movies, even though the preliminary wave of negativity was laborious to stomach. "As soon as you put yourself online you're exposing yourself to the whole world. So you are going to get the positives with the negatives," she instructed journalist Victoria Derbyshire in 2019.

"Even the most beautiful girl or guy in the world is always going to get something," she endured. "I think when I first started it was a lot of 'you're ugly' — ugly is just such a thrown-around word."

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Nikki added that she has kind of grow to be immune to insults because of how frequently she gets them online. "That's not to say that it doesn't get to me [but] I think I've realized that the people commenting horrible things, it's much more about them than it is you," she noted.

Despite the bullying, Nikki has never attempted to trade herself.

The Nikki Lilly Meets… host has collected over 1 million YouTube subscribers as a result of she practices what she preaches, which is self-love. "I think it's so important to be yourself because why should you fit this mold of how you should be, or how you should act, or how you should look?" she mentioned.

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"Everyone is different and everyone is unique and if we lived in a world where everyone looked the same and acted the same and everyone had the same likes, it would be a really boring world."

Nikki may be juggling what looks like one thousand initiatives at the second, together with the charity she based with her parents to fund research and raise awareness for AVM, but she also has to have in mind to take it easy from time to time.

In June of 2018, the BAFTA Special Award recipient used to be hospitalized for extensive bleeding. "They had to put me in a sleep-induced coma for eight days to stabilize the bleeding and just let my body rest really because I'd lost so much blood," she advised ITV's This Morning final February. 

We’re glad to see that Nikki isn’t letting her past struggles dictate her long run.

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